December 17th: Today the plan is to continue weaning the ventilator and hopefully remove the endotracheal tube :) Happy, happy day...I can't wait to hold my baby again! They also hope to wean her off of her Milrinone, which is the last of her cardiac meds. By the end of the day, we hope to be down to just a couple IV meds- TPN and lipids for nutrition and lasix to continue her diuresis. They also plan to change her pain medication to a PRN, or as needed medicine, instead of a continuous drip...each medicine they discontinue is a small win for Emmy, and a step closer to home!
Evening update: All did not go as planned and I'm feeling very defeated today. Emmy still has too much excess fluid on the lungs to be able to tolerate being off the ventilator, so obviously she could not be extubated. She did get an additional diuretic to increase her urine output, so hopefully by tomorrow, enough fluid will have drained off that she can finally have the breathing tube removed. I feel like we have the same goals everyday but are never able to accomplish them and it's very frustrating.
On a more positive note, the Milrinone was discontinued today and the Fentanyl drip was weaned down. The pain medicine wasn't turned completely off because she is still intubated which undoubtedly causes some discomfort. For now I'm just hoping that tomorrow will be a more productive day.
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